Tonje Lundeby from Oslo University Hospital (OUS), together with Charlotte Borge-Andersen, a Norwegian user representative, recently presented MyPath during the national course “Patient and Public Involvement in Medical and Health Research” hosted by the University of Bergen (UiB). The three-day course attracted around 100 participants, including researchers, PhD students, and user representatives.
Their joint lecture, titled “PPI activities in an innovation and implementation project – MyPath,” provided a dual perspective on the value of user involvement in research and innovation. Charlotte Borge-Andersen, general manager of the Pancreatic Cancer Network Norway (PKNN), shared her personal journey as a family carer and highlighted the motivation behind PKNN’s involvement in the MyPath project.
Tonje Lundeby introduced the MyPath project and outlined its comprehensive approach to patient and public involvement (PPI). She discussed the lessons learned from integrating PPI into the project’s development and implementation. In the joint session both presenters offered practical advice looking to collaborate effectively, Tonje for for researchers and and Chartlotte for user representatives.
The presentation underscored the importance of PPI and meaningful user engagement in developing digital, patient-centred cancer care pathways.
